Once a year we hold our free KMSK Knowledge Forum on Rare Diseases on a specific topic. Presentations and panel discussions create an intensive exchange between affected parents and experts. Here we offer space for constructive discussions on new solutions. The basis for the forum is the current issue of the KMSK SELFCARE magazine N° 02. Based on this, we will be holding the 12th KMSK Knowledge Forum "Rare Diseases in Children - The Challenging Path Before and After Diagnosis" on International Rare Disease Day on February 28, 2025.